Association for Inherited Cardiac Conditions
St Catharine's College Cambridge
Credit Ian Olsson
WELCOME
Inherited cardiovascular conditions (ICCs) is a term used to describe a variety of inherited, familial diseases of the heart and great vessels. The main types affect the heart muscle (called the cardiomyopathies), the electrics of the heart (channelopathies) and the major blood vessel coming from the heart (aortopathies). Each of these diseases in some cases can be life threatening.
This website is intended to support clinicians and anyone involved in the care of someone with an ICC. It hopes to provide the opportunity for you to access relevant, high quality information about these conditions.
The Association of Inherited Cardiac Conditions (AICC) is a National organisation which brings together a network of expertise from all over the UK, who work together with patient representatives, healthcare professionals and voluntary organisations to support improvements in the diagnosis, treatment and outcomes of people with ICCs. We aim to deliver standardised quality care across the UK which is accessible for all and to benchmark care delivery according to evidence based guidelines and audits of practice.
"For 15 years the Association of Inherited Cardiovascular Conditions (AICC) has led the way in providing education, research support, and a voice for the whole community of doctors, nurses, genetic counsellors, patients and others seeking to improve the care of those with ICCs. The landscape of Inherited Cardiovascular Conditions is changing rapidly. Over the next 15 years, together, we will build further upon this fantastic work!"
We encourage all with an interest in cardiology, genomics, inherited or acquired cardiac conditions to join the AICC. These conditions, whilst reportedly rare, are collectively common and are associated with unnecessary and preventable sudden death. It is important for all doctors looking after patients with heart disease or familial disease to have an understanding of how to optimally manage ICCs.
Join our annual meeting and training events to collaborate and learn from world-leaders in the field of inherited cardiovascular conditions. We are keen to grow and develop. If you would like anything to be included here, or if there are any upcoming events that you think would be helpful to other patients and/or clinicians, please get in touch via the 'Contact us' section or aicc@bcs.com
Dr Jan Till
Past President of the AICC
AICC Annual Conference
St Catharine's College Cambridge
11th-12th November 2024
A huge thank you to everyone who joined us for AICC 2024, we hope you enjoyed the conference! We would love to hear your thoughts and feedback so that we can continue to improve.
Certificates of attendance will be provided on receipt of your completed feedback form.
St Catharine's College SCR room
Credit Rossana Leonetti
Latest Jobs
Clinical Fellow in Inherited Cardiac Conditions - Cardiology
University Hospitals Birmingham NHS Foundation Trust
Applications are invited for a 12 month fixed-term Clinical Fellow in Inherited Cardiac Conditions, based with our Cardiology Department.
Qualifications (Essential)
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*Full registration with the GMC
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*Shall have equivalent experience and competencies in line with GMC standards/Good Medical Practice
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*Eligibility to live and work in the UK
Experience (Essential)
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Considerable experience in cardiomyopathy clinical services
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Cardiac imaging
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Advanced cardiac imaging
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Understanding of basic genetic test results
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Understanding of advanced genetic testing
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Working in a multidisciplinary environment
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Participation in a recognised scheme of continuing medical education
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Research experience
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Teaching experience
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Advanced life support training
Case of the Month
Antenatal Diagnosis of Aortopathy: a case report of Arterial Tortuosity Syndrome
Inherited aortopathies encompass a variety of genetic syndromes that can manifest as arterial tortuosity. Antenatal diagnosis is possible, which allows for tailored prenatal care and postnatal management.
About the Association of Inherited Cardiovascular Conditions (AICC)
We aim to provide consistent, top quality education and training, advice on management and best practice, as well as acting as a forum for data collection, audit and collaborative research. Membership is open to clinicians, nurses, counsellors, scientists and professions allied to medicine, as well as to persons from organisations and charities involved in support of such families.
Management of inherited cardiac conditions is currently one of the most rapidly evolving areas in cardiology. The last decade has seen a major change in our recognition of these conditions from apparently rare isolated disorders, to a group which collectively are common and which may be associated with the tragedy of unnecessary sudden death.
Contact: aicc@bcs.com