For the purpose of the Data Protection Act 1998 and the GDPR, the data controller is The Association of Inherited Cardiac Conditions (AICC), 9 Fitzroy Square, London W1T 5HW.
We will regularly review our retention of your personal data and delete any personal data which is not necessary for us to retain.
Information Collection and Use
We collect information from our users at several different points on the website - this is for customer service and billing purposes. We also collect data from our users so that we can customise the site according to individual selections. The AICC is the sole owner of the personal information collected from this site. We will not sell, share, or rent this information to others.
Legal basis for the use of your data
We rely on the following clauses as a legal basis for the collection and processing of your data:
Some of the personal data we collect and process is done with your consent. For example, we rely on consent when we send you membership communications or emails regarding AICC and other professional courses, conference, events (including programmes & agendas) if your email subscription preferences indicate you are willing to receive such emails. You have the right to withdraw consent at any time. See more information about your rights to withdraw consent further down the page.
From time-to-time our site requests information from users via surveys or contests. Participation in these surveys or contests is completely voluntary and the user therefore has a choice whether or not to disclose any information requested. Information requested may include contact information (such as name and address), and demographic information (such as postcode, age level). Contact information will be used to notify the winners of award prizes. Survey information will be used for purposes of monitoring or improving the functionality of the site and education.
You have the right to ask us not to process your personal data (following opt in) for marketing purposes. We will inform you (before collecting your data) if we intend to use your data for such purposes or if we intend to disclose your information to any third party for such purposes. You can exercise your right to prevent such processing by not checking certain boxes on the forms we use to collect your data or via your profile page on this website. You can also exercise the right at any time by contacting us at email@example.com
Our legitimate interests include ensuring that the AICC website is operating effectively and that you as a user can make use and benefit of all its services (browsing, registering for a course or conference, getting notifications regarding renewals etc.). AICC Members are also sent regular member communications by email (these include; announcements, updates, topical news relevant to the field of cardiology, Society news, guidance, membership benefits, forthcoming AICC courses, conferences, education, resources and the AICC President's message), using contact information taken from their membership application form.
In order to receive marketing email alerts from the AICC, users have to complete a registration form and opt in to receive updates on AICC Courses, Conference, Education and Events. These emails will from time to time include information on symposia events sponsored by industry: this includes pharmaceutical, medtech and healthcare companies promoting products or services related to cardiology in an educational format and advertised as 'sponsored symposia'.
During registration a user is required to give contact information (such as name and email address). This information is used to contact the user about the services on our site for which they have expressed interest. It is optional for the user to provide demographic information (such as role and gender), and unique identifiers, but these are encouraged so we can provide a more personalised experience.
You may unsubscribe from AICC communications at any time, although we will still contact you regarding your membership account under the legitimate interest to do so and when this interest is not overridden by your data protection rights.
The AICC may process your data to comply with our legal and regulatory obligations e.g. preventing, investigating crime or working with law enforcement agencies.
Website usage and data collection/processing
We use IP addresses to analyse trends, administer the site, track users movement, and gather broad demographic information for aggregate use.
This web site contains links to other sites. Please be aware that the Association of Inherited Cardiac Conditions is not responsible for the privacy practices of such other sites. We encourage our users to be aware when they leave our site and to read the privacy statements of these third party sites. This privacy statement applies solely to information collected by this Web site.
This website takes every precaution to protect our users information. When users submit sensitive information via the website, your information is protected both online and off-line.
When our registration/order form asks users to enter sensitive information (such as a credit card number), that information is encrypted and is protected with the best encryption software in the industry - SSL. While on a secure page, such as our order form, the lock icon on the bottom of Web browsers such as Netscape Navigator and Microsoft Internet Explorer becomes locked, as opposed to un-locked, or open, as will be the case for most of the time that a user is browsing the web.
If you have any questions about the security at our website, you can send an email to firstname.lastname@example.org
Correcting/Updating Personal Information
If a users personally identifiable information changes (such as their postcode), or if a user no longer desires our service, we will endeavour to provide a way to correct, update or remove that users personal data provided to us. This can usually be done at the personal profile page or by sending an email to email@example.com
If you request to delete your data, then the data will stop being retained and deleted or anonymised immediately. Unfortunately, the transmission of information via the Internet is not completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your data transmitted to the AICC; any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access.
International transfers of personal data
Your Rights (as a data subject)
You have the right to withdraw your consent to the processing of your personal data by submitting a written request to that effect to firstname.lastname@example.org. Furthermore, if you believe any of the personal data we hold about you is inaccurate, please tell us so we can correct it as necessary. You always have the right to request for the deletion of your data. We have a formal process which we will follow if you decide you would no longer like us to retain our data. We will follow our usual customer service response and be in touch to confirm we have received the request in less than four business hours (Monday to Friday from 9am to 5pm). Once the request has been received, it will take 7 business days for it to be completed.
Please email email@example.com if you would like to request deletion of your data.
If you are unhappy with the way your personal data has been processed by us, you have the right to lodge a complaint with the Information Commissioner's Office through their site www.ico.org.uk
Changes to this policy
User Comments - Disclaimer
These comments are written by the users of this site. Please make note of the following when reading or writing these comments.
Use of trademarks
The comments trademarks and logos contained within this section are the property of the owners of those trademarks.
Limitation of liability
In no event shall the Association of Inherited Cardiac Conditions be liable for any indirect, special, incidental or consequential damages, including, without limitation, damages for loss of goodwill or any and all other commercial damages or losses, even if advised of the possibility thereof, and regardless of whether any claim is based upon any contract, tort or other legal or equitable theory, relating or arising from the comments on this site.
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