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The AICC

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The AICC is an organisation which is run by a Council of volunteers who are elected by members. 

AICC Council

Dr Stephen Page - President of AICC and Consultant Electrophysiologist (Leeds)

Stephen is a Cardiologist and Electrophysiologist in Leeds and heads the ICC Service for West Yorkshire. Stephen has been a Council member since 2021 and has led the development of the National Survey. He is on the Writing Group for the new ICC Service Specification and is research active with collaborations with Bart’s Heart Centre, Imperial College and St George’s Hospital, London. His main interest is in service development and he hopes to strengthen the ability of the AICC to promote and support equitable service delivery across the UK.

Dr Jan Till - Past President of AICC and Consultant Paediatric Electrophysiologist (London)

Jan is the past president of the AICC, having served as a council member for some years. She is passionate about raising awareness and identifying ways in which we can improve care of patients and families living their lives with an ICC. Her major interest is device treatment, genetics and management of Channelopathies.

Jan works at the Royal Brompton Hospital in London, where she helped build the inherited cardiac conditions unit - as a consultant in congenital electrophysiology. She is Co-Director of Children's services at the Trust, and leads in Channelopathies, caring for both adults and children with channelopathies.

Dr Eleanor Wicks - Joint Secretary of AICC and Consultant Cardiologist (Oxford)

Eleanor is the Clinical Lead of the Inherited Cardiac Conditions service in Oxford. She has longstanding specialist interests in inherited and acquired (including inflammatory) conditions, genomics, heart failure and multimodality imaging.

Whilst on the AICC Council since 2021, she has co-authored the GMC curriculum for ICCs, has co-organised the AICC annual conferences and created the AICC website which has greatly enhanced equitable access to support, education and training. Eleanor harnesses clinical and academic synergy via collaborative networks to help define disease mechanisms in search of improved diagnoses, risk stratification and the exploration of potential therapeutic targets. She strives to enhance education and training and to translate research findings and embed technology into clinical practice in the hope of delivering improved, quality care and personalised therapy with substantial benefits for patients. Over the next few years, she hopes to engage national leadership in support of the AICC’s ambitions.

Professor Gerry Carr-White - Joint Secretary of AICC and Consultant Cardiologist (London)

Gerry was the clinical lead for heart failure, and inherited diseases at Guy's and St Thomas' Hospitals for 14 years. He is now a deputy medical director of the cardiovascular, respiratory and critical care unit at Guy’s and St Thomas’ NHS trust. 

 

He currently sits on the 2 main national leadership groups for cardiology helping develop regional and national guidelines and service specifications for NHS England and is one of 2 cardiologists sitting on the pan London oversight board for strategy and patient pathways. He is the vice president for Cardiomyopathy UK, leading patient education events across the country, and is the network clinical lead for both King’s Health Partners and the NHS England South London Cardiac Network. He is a Professor in heart failure and inherited diseases at King's College London, and the heart failure lead for the KCL AI centre.

Gerry has always been passionate about equitable networks and our challenge is to embed financial incentives for excellent ICC care into the new ICB led system, alongside pathways co-designed with patients, and to continue to champion and support our genetic counsellors, nurses and consultants.

Dr Rachel Bastiaenen – Treasurer of AICC and Consultant Cardiologist (London) 

Rachel is Clinical Lead for the Inherited Cardiac Conditions service at Guy’s and St Thomas’ Hospitals and an Honorary Senior Lecturer at Kings College London. She has been on AICC council since 2022 and is co-organising the 2023 conference. She is passionate about ICC education and is part of the team behind the Core Learning in Inherited Cardiac Conditions (CLICC) programme. She is part of the writing group for the new NHSE ICC Service Specifications and is keen to help improve ICC service delivery and equity of patient access nationally.

This is a very exciting time to work in the field of inherited cardiac conditions. There are major national initiatives in progress, a new service specification under review, novel small molecule therapies about to reach the clinic, and our ever-evolving understanding and utilization of genomics. And of course, there is our annual conference and associated training day to look forward to in the autumn!

 

We look forward to working hard on your behalf over the next three years to build on the fantastic platform we inherit, and continue to build and grow the AICC as the national professional body representing health care professionals in this field.

Dr John Dean - Consultant Clinical Geneticist (Aberdeen)

John Dean is a Consultant in Clinical Genetics for NHS Grampian, based in Aberdeen. He is also Joint Lead Clinician for the Network for Inherited Cardiac Conditions Scotland.

 

His special interests include Long QT syndrome, Marfan Syndrome and the molecular investigation of Sudden Cardiac Death. He is Emeritus Reader in Medicine at the University of Aberdeen.

Dr Dimitra Antonakaki - Consultant Cardiologist & AICC Trainee Representative

Dimitra is a Consultant Cardiologist with a specialist interest in inherited and acquired cardiac conditions (ICCs) and multimodality cardiovascular imaging. 

 

She graduated with honours from the University of Athens in Greece and subsequently completed her Medical and Cardiology training in London. She has worked as a Consultant Cardiologist in Oxford and Brighton and is currently working at the National Heart and Lung  Transplant Centre in Greece as an ICC, CMR and Sports Cardiologist. Dimitra is also a Senior Clinical Lecturer at St George's, University of London and is a member of the European Society of Cardiology Social Media Task Force for the Council of Cardiogenomics. She previously obtained a competitive scholarship from St George's, University of London where she completed an MSc (with distinction) in Sports Cardiology. Nationally, Dimitra sits on the Council of the Association of Inherited Cardiovascular Conditions (AICC). Her role as the Trainee Representative for the AICC enables her to work closely with the BJCA to ensure equitable access to training for all in ICCs.

Kate Thomson - Allied Health Professional - Clinical Scientist (Oxford)

Kate is an experienced Clinical Scientist and a Fellow of the Royal College of Pathologists. She has specialised in inherited cardiac conditions for over 17 years, and is the lead for inherited cardiac disorders in the Oxford Medical Genetics Laboratory (OMGL). She recently completed a DPhil in Cardiovascular Medicine at the University of Oxford, where her research focused on the genetic basis of inherited cardiomyopathies.

Rachel Walker – ICC Nurse Specialist (Sheffield)

Rachel has 23 years experience working in within cardiology, most recently as ICC nurse specialist in the South Yorkshire Regional ICC service for the last 13 years. Her long experience of running nurse-led clinics has given her an intimate understanding of the needs of ICC patients and their families and the unique nature of the care they need. Her role was initially funded by Cardiomyopathy UK and subsequently she had the opportunity to work for their helpline for a number of years. This gave her an appreciation of the variations in the availability of ICC care throughout the country and the need for a National approach to its management. Although Rachel works with all ICCs, she has a particular interest in heart muscle disease.

Dr Nora Shannon - Consultant Clinical Geneticist (Nottingham)

Nora Shannon is a Consultant Clinical Geneticist in the Nottingham Clinical Genetics Service. She was involved in setting up Inherited Cardiac Conditions Clinics in both Birmingham and Nottingham and is the Genetics Lead for the Nottingham ICC Service covering Nottinghamshire, Lincolnshire and Derbyshire.

 

Nora has an interest in service delivery and design and has particularly worked to improve access to genetic testing for families with SADS in the region. Her current research interests include factors which affect access to screening in families with aortic aneurysms.

Dr Claire Turner - Consultant Clinical Geneticist (Devon & Exeter)

Claire is a Consultant Clinical Geneticist, appointed to the Peninsula service in 2010, and is the genetics lead for the regional Inherited Cardiac Conditions service.

 

Claire's MD, awarded in 2013, reflected a laboratory based molecular project on imprinting disorders. She has a Postgraduate Certificate in Medical Education, awarded in 2009 and is the lead for teaching Clinical Genetics at the University of Exeter Medical School. She has numerous publications in the field of Clinical Genetics, including in inherited cardiac conditions.

Joseph Westaby - Consultant Pathologist (London)

Dr Joseph Westaby is an NIHR Clinical Lecturer in Cardiovascular Pathology at St George’s University of London and the South London Deanery. He studied Graduate Entry Medicine at The University of Nottingham and has trained in London since. He undertook an Academic Clinical Fellowship and PhD in the Cardiac Risk in the Young Cardiovascular Pathology Laboratories.

His primary research interest is Sudden Cardiac Death. He also undertakes coronial autopsies for the Inner West London Coroner.

Stephanie Oates - Genetic Counsellor (London)

Steph is the current GC representative for the AICC Council. She has 15 years’ experience in cardiac genetics, in Oxford and London, as well as Auckland, New Zealand. She is currently working at Great Ormond Street Hospital as the genetic counsellor for the paediatric cardiology department.

Steph has a wide range of experience in the clinical setting, research, teaching, adults and paediatrics as well as charity work. Her main focus is Cardiomyopathies and Arrhythmias and promoting the unique contributions genetic counsellors can make in improving patient care, both pre and post genetic testing.

Dr Luke Starling - Paediatric Cardiologist (London)

Luke Starling is a Consultant Paediatric Cardiologist, specialising in Inherited Cardiovascular Diseases. He leads the Inherited Arrhythmia Service at Great Ormond Street Hospital for Children (GOSH) and has a particular interest in ion channel disease and sudden cardiac death. He has established a novel neurocardiac channelopathies Service and a local left cardiac sympathetic denervation (LCSD) programme. He combines his role in inherited cardiovascular diseases with general paediatric cardiology, including complete acute on-call commitments. Dr Starling studied medicine at University College London and then began training in Paediatrics in London and the southwest of England, before undertaking training in Paediatric Cardiology at GOSH and The Royal Brompton Hospital, including further sub-specialist training in electrophysiology and inherited cardiac conditions. Dr Starling knows deep down that England cannot possibly win both the cricket and football World Cups in the same year – but he would never admit to this in public.

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Mission

The AICC aims to drive forward clinical standards for ICCs through education, national guidance and networks of care which facilitate equitable access to quality care irrespective of postcode. 

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Guidelines, Papers and Publications

The AICC hopes to publish National guidelines on the management of AICCs to facilitate the benchmarking of quality standards across the UK for ICCs. It endorses peer reviewed publications, reviews and scientific papers.

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Research highlights

The AICC hopes to promote innovative research and to bring together partners to pioneer novel research in this field of cardiology and to translate these findings back into clinical practice.

 

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Education and Training opportunities

The AICC is keen to impart knowledge to help others learn and excel. Our educational activities aim to train the next generation of doctors to ensure that patients and their families with ICCs receive the very best of care they deserve.

Testimonials

Dr CM

I would like to thank the AICC for an excellent conference which was inspiring and educational.

Dr DA

Thank you for the opportunity to be part of the AICC journey. 

Mr AP

I can't begin to thank you enough for everything you have done to help improve care for families such as ours.

Thank you

Mrs HM

A massive thank you for signposting us to the critical information. 

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