Association of Inherited Cardiovascular Conditions
Map & AICC Service Directory
This resource contains details of the main centres providing Inherited Cardiac Conditions (ICC) services across the whole of the UK.
The aim is to facilitate communication between centres and to provide specific information for referrers to ensure that patients and family members can access the most appropriate service for them.
This service directory has been generated following the national survey of ICC centres undertaken by the AICC in 2021.
Operating the directory:
Select a region in the 'Service Location' drop down below.
Bath
Regional hub:
Address:
Bristol
Cardiology, Royal United Hospital Bath, Combe Park, Bath, Avon BA1 3NG
Lead clinician:
Dr Oliver Watkinson
Website:
Affiliated GLH:
Bristol
Email:
-
Cardiomyopathies
Inherited Arrhythmias
Neuromuscular Conditions/Mitochondrial Disease
SADS screening
Services
Affiliated GMSA:
South West
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Oliver Watkinson
-
Email:
Tel:
Email:
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Birmingham
Regional hub:
Address:
Queen Elizabeth Hospital Birmingham
Queen Elizabeth Hospital Birmingham (QEHB), Nuffield House, 3rd Floor Room 17/E, Mindelsohn Way, Edgbaston , Birmingham, B15 2WB.
Dudley Road, Birmingham, West Midlands, B18 7QH.
Lead clinician:
Shared role
Website:
Affiliated GLH:
West Midlands Genetics Laboratory
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
Central & South
Tel:
0121 3714448
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Manish Kalla (Electrophysiology)
Dr William Bradlow (Heart muscle)
Dr William Moody (Heart muscle)
Dr Paul Clift (Aortopathy)
Dr Bode Ensam
Ms Georgiana Neculau
Ms Reena Dini
Mrs Debrah Ntini
Email:
Tel:
Email:
0121 371 4448 or 0121 371 4472
Tel:
0121 371 4775
079202 66957
07810851375
07867 373578
Paediatric ICC Team
Clinicians:
Dr Vinay Bhole (Electrophysiology)
Dr Ashish Chikermane (Aortopathy & Heart Muscle)
Email:
Tel:
0121 3714544 - 0121 3717884
Clinical Genetics Team
Clinicians:
Dr Helen Cox
Dr Suresh Somarathi
Dr Saba Sharif (Aortopathy)
Dr Deborah Osio (Aortopathy)
Email:
Tel:
0121 335 8024 ext 5604
Pathologist:
-
Genetic counsellor:
Ms Frances Lane
Mr David Walker
Email:
Tel:
0121 335 8024
Psychological services:
N/A
Bournemouth, Southampton & Dorset
Regional hub:
Address:
Bournemouth, Southampton & Dorset
Royal Bournemouth Hospital, Castle Lane East, Bournemouth, Dorset, BH7 7DW
Wessex Clinical Genetics Service, Level G, Princess Anne Hospital Southampton SO16 5YA.
Lead clinician:
Dr Catherine Mercer (Genetics)
Dr Chris Critoph (Dorset Cardiology)
Website:
Affiliated GLH:
West Midlands Genetics Laboratory
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
Central & South
Tel:
02381 206170
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Southampton: Dr Arthur Yue (EP, SADS), Dr Andrew Flett a & Dr John Rawlins (Heart muscle), Dr Aisling Carroll (Aortopathy)
Bournemouth: Dr Chris Critoph (Heart muscle), Dr Richard Bala (EP, SADS)
Stephanie Scott
Email:
Tel:
Email:
0300 019 5244
Tel:
Paediatric ICC Team
Clinicians:
Dr Shankar Sadagopan (EP), Dr Kevin Roman
Email:
Tel:
Clinical Genetics Team
Clinicians:
Dr Catherine Mercer
Email:
Tel:
02381 206170
Pathologist:
Genetic counsellor:
Melanie Watson, 5 additional GCs
Email:
Tel:
02381 206170
Psychological services:
Bradford
Regional hub:
Address:
Leeds General Infirmary
Bradford Teaching Hospitals NHS Foundation Trust, Bradford Royal Infirmary, Duckworth Lane, Bradford, BD9 6RJ
Lead clinician:
Dr Keerthi Prakash
Website:
Affiliated GLH:
North West
Email:
-
Sports Cardiology Cardiomyopathy Channelopathy SADS
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Keerthi Prakash
-
Email:
Tel:
Email:
01274383182
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
-
Brighton
Regional hub:
Address:
Guys and St Thomas' NHS Foundation Trust
Inherited Cardiac Conditions Team, Royal Sussex County Hospital, Eastern Road, Brighton, East Sussex, BN2 5BE
Lead clinician:
Dr Tommy Alway
Website:
-
Affiliated GLH:
South East
Email:
Cardiomyopathy, inherited arrhythmias, aortopathies, SADS screening
Services
Affiliated GMSA:
South East
Tel:
01273696955
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Tommy Alway, Dr Emmanouil Androulakis, Dr Rachael James (aortopathy)
Rodrigo Leoconde (aortopathy)
Email:
Tel:
Email:
01273696955
Tel:
-
Paediatric ICC Team
Clinicians:
N/A
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
N/A
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
N/A
Email:
Tel:
-
-
Psychological services:
N/A
Bristol and South West Inherited Cardiac Conditions Service
Regional hub:
Address:
Bristol
ICC Service, Level 7, Bristol Heart institute, Bristol Royal Infirmary, Terrell St, Bristol BS2 8ED.
Department of Clinical Genetics, St Michaels Hospital, Southwell St, Bristol BS2 8EG.
Lead clinician:
Prof AG Stuart (Cardiology)
Website:
Affiliated GLH:
South West
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular (mitochondrial disease referred to Oxford)
SADS screening
Barth Syndrome Specialist Clinic
Services
Affiliated GMSA:
South West
Tel:
01173424514
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Prof AG Stuart (EP/Aortopathy/cardiomyopathy)
Prof Guido Pieles* leaving jan 2022
Dr Ashley Nisbet (EP/SADS)
Dr Ed Duncan. (EP/ SADS)
Dr Eva Sammut (All ICC)
Dr Steph Curtis (Aortopathy/c=Cardiomyopathy)
Prof Jules Hancox (Cellular EP/Research Channelopathy)
Dr Steve Hamer (Cellular EP/Channelopathy)
Di Barlow (Paediatrics)
Nina Edwards (Adult)
Anna Sice (Adult Arrhythmia nurse with interest in ICC)
Email:
Tel:
Email:
01173424514
Tel:
-
-
Paediatric ICC Team
Clinicians:
Prof AG Stuart (EP/Aortopathy/Cardiomyopathy)
Dr Catherine Armstrong
Dr Cecilia Gonzalez (EP)
Dr Georgia Spentzou (EP)
Prof Jules Hancox (Cellular EP/ Research Channelopathy)
Dr Steve Hamer (Cellular EP/Channelopathy)
Email:
0117 3428852
Tel:
0117 3428852
Clinical Genetics Team
Clinicians:
Prof Ruth Newbury Ecob
Dr Karen Low
Dr Ingrid Scurr
Email:
Tel:
-
Pathologist:
-
Genetic counsellor:
Nicky Jackson
Email:
Tel:
-
-
Psychological services:
N/A
Cambridge - Addenbrooks
Regional hub:
Address:
Cambridge
Cardiology: Department of Cardiology, Ward K2 Box 263, Cambridge University Hospitals NHS Trust, Addenbrookes Hospital, Cambridge Biomedical Campus, Hills Road, Cambridge CB2 0QQ.
Genetics: East Anglian Regional Medical Genetics Service | Box number 134, Cambridge University Hospitals, Hills Road, Cambridge CB2 0QQ.
Lead clinician:
Dr Rosemary Rusk (Cardiology)
Dr Sarju Mehta (Clinical Genetics)
Website:
Affiliated GLH:
East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
Services
Affiliated GMSA:
East
Tel:
01223 349147
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Rosemary Rusk (Aortopathies, Storage Disorders, Multi-system diseases)
Dr Greg Mellor (Electrophysiology, Inherited Arrhythmias)
-
Email:
Tel:
Email:
-
01223 349147
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Sarju Mehta
Email:
Tel:
01223 216446
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Cambridge - Papworth
Regional hub:
Address:
Cambridge
Royal Papworth Hospital, Papworth Road, Cambridge, CB2 0AY
Lead clinician:
Joint
Website:
Affiliated GLH:
East
Email:
-
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Services
Affiliated GMSA:
East
Tel:
01223 639791
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Lynne Williams (Cardiomyopathy, Cardiac Sarcoid, Cardiac Imaging, Neuromuscular Disease)
Dr Greg Mellor (Inherited Arrhythmia)
Email:
Tel:
Email:
01223 639791
Tel:
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Coventry & Warwick
Regional hub:
Address:
University Hospital Coventry and Warwick (UHCW)
UHCW NHS Trust, Clifford Bridge Rd, Coventry, CV2 2DX
Lead clinician:
Joint
Website:
Affiliated GLH:
Central & South
Email:
Cardiomyopathy, Inherited arrhythmias, HCM, Channelopathy, Aortopathy, SADS screening
Services
Affiliated GMSA:
Central and South
Tel:
02476 96 4000
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
HCM/ICC Shared: Prof Faizel Osman (EP)/Dr Peter Glennon (SRT)/Dr Jamal Khan (cardiac imaging) Aortopathy: Dr Dawn Adamson/Mr Uday Dandekar
Geeta Paul, Nav Singh, Kirsty
Email:
Tel:
Email:
Tel:
02476964000
Paediatric ICC Team
Clinicians:
Email:
Tel:
Clinical Genetics Team
Clinicians:
Email:
Tel:
Pathologist:
Genetic counsellor:
Email:
Tel:
Psychological services:
Derby and Burton
Regional hub:
Address:
Cambridge University Hospitals NHS Foundation Trust
UHDB Inherited Cardiac Condition Service, University Hospitals of Derby and Burton, Royal Derby Hospital, Uttoxeter Road, DE22 3NE
Lead clinician:
Joint
Website:
Affiliated GLH:
East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Sarcoidosis
Amyloidosis
Services
Affiliated GMSA:
East
Tel:
01332 785092
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Abutariq Taher (Cardiomyopathy, HCM, channelopathy and SADS)
Dr Nauman Ahmed, Cardiology Service Lead (Imaging, EP, Channelopathy, SADS and Cardiomyopathy)
Dr Surojit Bose (Imaging, aortopathy and cardiomyopathy)
Racelyn Obina
Heather champion
Email:
Tel:
Email:
uhdb.iccservices@nhs.net Secretary email: anna.lawson8@nhs.net
01332 785092
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Nora Shannon
Email:
Tel:
0115 9627728
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
-
Devon & Cornwall
Regional hub:
Address:
Devon & Exeter (Peninsula) ICC Service
Inherited Cardiac Conditions Service, Cardiology Department, Royal Devon and Exeter Hospital, Barrack Road, Exeter, EX2 5DW
Clinical Genetics Royal Devon & Exeter NHS Foundation Trust Gladstone Road, Exeter, EX1 2ED
Lead clinician:
Dr Martina Muggenthaler (Cardiology)
Dr Claire Turner (Clinical Genetics)
Website:
Affiliated GLH:
Bristol
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Amyloid
Services
Affiliated GMSA:
South West
Tel:
01392 408879 (secretary)
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Martina Muggenthaler
Dr Matthew Lovell
Dr Andrew Ludman
Karen Lubbe
Zoe Grout
Lynne Bastable
Email:
Tel:
Email:
01392 408879
Tel:
-
01392 403022
Paediatric ICC Team
Clinicians:
Dr Catherine Armstrong
Dr Nigel Osborne
Prof David Mabin
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Claire Turner
Email:
Tel:
01392 405745
Pathologist:
-
Genetic counsellor:
Sandra Cookson
Nicol Lambord
Email:
Tel:
01392 405745
Psychological services:
-
Essex
Regional hub:
Address:
Essex Cardiothoracic Centre, Basildon
Mid and South Essex University Hospitals Group, Basildon University Hospital, Nethermayne, Basildon, SS16 5NL
Lead clinician:
Dr Jason Dungu
Website:
Affiliated GLH:
East
Email:
-
Cardiomyopathy
SADS
Shared care for mitochondrial disease/neuromuscular disease
Services
Affiliated GMSA:
Royal Brompton Genetics Laboratory
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Jason Dungu
-
Email:
Tel:
Email:
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Gloucester
Regional hub:
Address:
Gloucester
Gloucestershire Hospitals NHS Foundation Trust
Lead clinician:
Dr Will Jenkins
Website:
Affiliated GLH:
Central & South
Email:
Cardiomyopathy
Services
Affiliated GMSA:
Central & South
Tel:
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Will Jenkins
Email:
Tel:
Email:
Tel:
Paediatric ICC Team
Clinicians:
Email:
Tel:
Clinical Genetics Team
Clinicians:
Email:
Tel:
Pathologist:
Genetic counsellor:
Email:
Tel:
Psychological services:
Hull
Regional hub:
Address:
Castle Hill Hospital
Castle Hill Hospital, Castle Road, Cottingham, HU165JQ
Lead clinician:
Dr Matthew Balerdi
Website:
Affiliated GLH:
North West
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
01482 623081
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Matthew Balerdi (Cardiomyopathy (excluding ACM), Aortopathy, Neuromuscular)
Dr Padmanhaban Shakkottai (Arrhythmias +ACM)
-
Email:
Tel:
Email:
01482623081
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Rupal Patel
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Katrina Prescott
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Mrs Kath Ashcroft
Kath Moore
Email:
Tel:
-
-
Psychological services:
N/A
Leeds
Regional hub:
Address:
Leeds General Infirmary
Inherited Cardiac Conditions Service, Department of Cardiology, Jubilee Wing, Leeds General Infirmary, Great George Street, Leeds LS1 3EX.
Department of Paediatric Cardiology, Jubilee Wing, Leeds General Infirmary, Great George Street, Leeds LS1 3EX.
Department of Clinical Genetics, Chapel Allerton Hospital, Harehills Lane, Leeds. LS7 4SA.
Paediatric Psychology Service, E Floor, Martin Wing, Leeds General Infirmary, Great George Street, Leeds. LS1 3EX.
Lead clinician:
Dr Stephen Page
Website:
Affiliated GLH:
North West
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular ConditionsMitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
0113 3926619
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Stephen Page
Dr Alex Simms
Dr Anshu Sangupta
Dr Waz Baig
Dr Rob Sapsford
Mrs Annabel Nixon
Mrs Clare Taylor
Email:
Tel:
Email:
0113 3926619
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Elspeth Brown
Dr Gracia Delle Donne
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Katrina Prescott
Dr Verity Harthill
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Miss Kath Ashcroft
Kathryn Moore
Email:
Tel:
-
0113 3924436
Psychological services:
Mrs Jayne Slack
leedsth-tr.ccpt@nhs.net
0113 3925143
Leicester
Regional hub:
Address:
University Hospitals of Leicester
Adult ICC service: Glenfield Hospital, Leicester, LE3 9QP.
Clinical Genetics and Paediatrics: Leicester Royal Infirmary, Infirmary Square, Leicester LE1 5WW.
Lead clinician:
Dr Harshil Dhutia
Website:
Affiliated GLH:
Cambridge University Hospitals
Email:
-
Cardiomyopathy
Channelopathy
Aortopathy
SADS screening
Services
Affiliated GMSA:
East
Tel:
01162583888
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr. Harshil Dhutia (adult ICC, cardiomyopathies, channelopathies, sports cardiology)
-
Email:
Tel:
Email:
01162583888
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr H R Dorkins
Email:
Tel:
0116 258 5736 or 0116 258 5697
Pathologist:
-
Genetic counsellor:
Laura Vilajuana
Jess Myring
Email:
Tel:
0116 258 5697
Psychological services:
N/A
Liverpool
Regional hub:
Address:
Liverpool Heart & Chest Hospital
Liverpool Heart & Chest Hospital; Thomas Drive, Liverpool L14 3PE
Lead clinician:
Dr Derek Todd
Website:
Affiliated GLH:
North West
Email:
Cardiomyopathies
Inherited Arrhythmias
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North West
Tel:
01516001391 / 01512543185/ 01512543181
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Derek Todd (Cardiomyopathies, channelopathy, EP, devices)
Prof Rob Cooper (Heart Muscle; Septal Reduction, CMR, Sports Cardiology)
Dr Victoria Petermerides (Cardiomyopathies, Channelopathies, Echocardiography, Sports Cardiology)
Dr Timothy Fairbairn (Advanced Imaging)
Dr Simon Modi (Channelopathies, cardiomyopathies, devices, EP, ASA)
Dr A Rao (Cardiomyopathies, devices)
Prof D J Wright (Cardiomyopathies, devices)
Prof Rod Stables (Intervention, septal reduction)
Mr Mark Pullan (Cardiothoracic surgeon, septal reduction and valve disease)
Dr Afshin Khalabari (Imaging - Inherited Aortopathies, Marfans)
Dr Richard Snowdon (Devices, sarcoid)
Mrs Karthryn Abernethy
Mrs Angela Langton
Email:
Tel:
Email:
-
-
Tel:
-
0151 600 1270 option 2
Paediatric ICC Team
Clinicians:
Dr Michael Bowes (Based at Alder Hey Hospital, Liverpool)
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Victoria McKay
Dr Natalie Canham
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Mrs Louise Dubois
Mrs Kim Clarke
Email:
Tel:
-
-
Psychological services:
Dr Jane McLachlan
London - Barts Heart Centre
Regional hub:
Address:
Barts Heart Centre
Department Of Inherited Cardiovascular Disease Unit (ICVD), Barts Heart Centre, St Bartholomew’s Hospital, West Smithfield, London EC1A 7BE.
Lead clinician:
Dr Neha Sekhri (ICVD (Cardiomyopathies)
Prof Pier Lambiase (Channelopathies)
Dr Fiona Walker (Aortopathies)
Website:
Affiliated GLH:
Royal Brompton Genetic Laboratory
Email:
Cardiomyopathy: bhnt.icvd@nhs.net
Channelopathy: bartshealth.ianurses@nhs.net
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (jointly with Queen Square)
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Services
Affiliated GMSA:
North Thames
Tel:
Cardiomyopathy: 020 3765 8611
Channelopathy: 0203 76 58644
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Neha Sekhri (Cardiomyopathy)
Prof Perry Elliott (Cardiomyopathy)
Prof Saidi (Sam) Mohiddin (Cardiomyopathy)
Dr Constantinos O'Mahony (Cardiomyopathy)
Dr Luis Lopes (Cardiomyopathy)
Dr Konstantinos Savvatis (Cardiomyopathy)
Dr Oliver Guttmann (Cardiomyopathy)
Dr Massimiliano Lorenzini (Cardiomyopathy)
Prof Pier Lambiase (Channelopathies/Arrhythmia Syndromes)
Prof Richard Schilling (Channelopathies/Arrhythmia Syndromes)
Dr Martin Lowe (Channelopathies/Arrhythmia Syndromes)
Dr Fiona Walker (ACHD, Aortopathies)
Dr Katherine von Klemperer (ACHD, Pregnancy)
Dr Bejal Pandya (ACHD, Aortopathies)
Cardiomyopathy: Linda Moss, Fiona Kearl, Nicola Champion, Henrietta Amponsah
Channelopathy: Charlotte Ives, Lucy Sivaraman, Claire Kirkby
Email:
Tel:
Email:
020 3765 8611
Tel:
0203 7658644
Paediatric ICC Team
Clinicians:
Prof Juan Kaski (Great Ormond Street)
Email:
Tel:
Linked with GOSH
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Huafrin Kotwal
Sinead Horgan
Antonetta Malan
Email:
Tel:
0203 7658612 or 7658875
Psychological services:
Victoria Kelly
London - GOSH
Regional hub:
Address:
Great Ormond Street Hospital (GOSH)
Centre for Inherited Cardiovascular Diseases, Great Ormond Street Hospital, Zayed Centre for Research into Rare Disease in Children, 20 Guilford Street, London WC1N 1DZ
Lead clinician:
Prof Juan Pablo Kaski
Website:
Affiliated GLH:
North Thames
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (jointly with Queen Square)
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Services
Affiliated GMSA:
North Thames
Tel:
020 7405 9200 Secretaries: ext 8839 or 5298
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Martin Lowe (Inherited Arrhythmia - Transition)
Emma Lord (Cardiomyopathy)
Sorcha Smyth (Cardiomyopathy)
Elisha Thompson (Cardiomyopathy)
Nichola French (Inherited Arrhythmia)
Alessia Odori (Inherited Arrhythmia)
Amy Fox (Aortopathy)
Ida Atti (Transition, Inherited arrhythmia)
Vacant post - TBC (Aortopathy)
Email:
Tel:
Email:
N/A - See Barts
N/A - See Barts
Tel:
Cardiomyopathy CNSs: ext 5305
Inherited arrhythmia CNSs: ext 5139
Aortopathy CNSs: 5124
Paediatric ICC Team
Clinicians:
Dr Juan Pablo Kaski (Cardiomyopathy; SADS; Inherited Arrhythmia)
Email:
Tel:
Clinical Fellows (for urgent and inpatient referrals): ext 7099
Clinical Genetics Team
Clinicians:
Dr Angharad Roberts (Aortopathy, Cardiomyopathy)
Email:
Tel:
-
Pathologist:
-
Genetic counsellor:
Stephanie Oates (Cardiomyopathy, Inherited arrhythmia, Aortopathy)
Email:
Tel:
-
Psychological services:
Dr Hannah Duncan
Dr Zoe Berger
London - Imperial
Regional hub:
Address:
Hammersmith Hospital
Imperial College Healthcare NHS Trust, Hammersmith Hospital, Peart Rose Clinic, Du Cane road, London, W12 0HS.
Lead clinician:
Dr Amanda Varnava
Website:
Affiliated GLH:
Royal Brompton Genomics Lab
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (jointly with Queen Square)
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Amyloid
Services
Affiliated GMSA:
South East
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Amanda Varnava
Vanessa Smith
Email:
Tel:
Email:
-
Tel:
07768 980832
Paediatric ICC Team
Clinicians:
Dr Amanda Varnava
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
London - Kings Health Partners (Guy's and St Thomas' and King's College Hospitals)
Regional hub:
Address:
Kings Health Partners (Guy's and St Thomas' and King's College Hospitals)
Cardiovascular Department, South Wing, Block D Lower Ground Floor, St Thomas' Hospital, Westminster Bridge Road, London, SE1 7EH.
Department of Cardiology, Hambledon Wing, Kings College Hospital, Denmark Hill, London SE5 9RS.
Paediatric Cardiology, Evelina London Children's Hospital, Westminster Bridge Road, London, SE1 7EH.
Clinical Genetics Department, Guys Hospital, 7th Floor Borough Wing, Great Maze Pond, London, SE1 9RT.
Lead clinician:
Dr Rachel Bastiaenen (ICC Adult Cardiology)
Dr Leema Robert (Cardiovascular Genetics)
Dr Aaron Bell (ICC Paediatric Cardiology)
Website:
Affiliated GLH:
Royal Brompton Molecular Lab (Viapath)
Email:
gst-tr.cardiology@nhs.net
kch-tr.kchreferrals@nhs.net
gst-tr.elchpaedcardioreferrals@nhs.net
gst-tr.geneticsreferrals@nhs.net
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Amyloid
Services