Association of Inherited Cardiac Conditions (AICC)
Map & AICC Service Directory
This resource contains details of the main centres providing Inherited Cardiac Conditions (ICC) services across the whole of the UK.
The aim is to facilitate communication between centres and to provide specific information for referrers to ensure that patients and family members can access the most appropriate service for them.
This service directory has been generated following the national survey of ICC centres undertaken by the AICC in 2021.
Operating the directory:
Start by selecting a region to search by in the 'Service Location' below or search via a GLH or search criteria in the search bar.
Select the result you are after from the listed 'service locations' to view the service information.
From there you can select a team to view the contact details for that team.
Bath
Regional hub:
Address:
Bristol
Cardiology, Royal United Hospital Bath, Combe Park, Bath, Avon BA1 3NG
Lead clinician:
Dr Oliver Watkinson
Website:
Affiliated GLH:
Bristol
Email:
-
Cardiomyopathies
Inherited Arrhythmias
Neuromuscular Conditions/Mitochondrial Disease
SADS screening
Services
Affiliated GMSA:
South West
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Oliver Watkinson
-
Email:
Tel:
Email:
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Birmingham
Regional hub:
Address:
Queen Elizabeth Hospital Birmingham
Queen Elizabeth Hospital Birmingham (QEHB), Nuffield House, 3rd Floor Room 17/E, Mindelsohn Way, Edgbaston , Birmingham, B15 2WB.
Dudley Road, Birmingham, West Midlands, B18 7QH.
Lead clinician:
Shared role
Website:
Affiliated GLH:
West Midlands Genetics Laboratory
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
Central & South
Tel:
0121 3714448
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Manish Kalla (Electrophysiology)
Dr William Bradlow (Heart muscle)
Dr William Moody (Heart muscle)
Dr Paul Clift (Aortopathy)
Dr Bode Ensam
Ms Georgiana Neculau
Ms Reena Dini
Mrs Debrah Ntini
Email:
Tel:
Email:
0121 371 4448 or 0121 371 4472
Tel:
0121 371 4775
079202 66957
07810851375
07867 373578
Paediatric ICC Team
Clinicians:
Dr Vinay Bhole (Electrophysiology)
Dr Ashish Chikermane (Aortopathy & Heart Muscle)
Email:
Tel:
0121 3714544 - 0121 3717884
Clinical Genetics Team
Clinicians:
Dr Helen Cox
Dr Suresh Somarathi
Dr Saba Sharif (Aortopathy)
Dr Deborah Osio (Aortopathy)
Email:
Tel:
0121 335 8024 ext 5604
Pathologist:
-
Genetic counsellor:
Ms Frances Lane
Mr David Walker
Email:
Tel:
0121 335 8024
Psychological services:
N/A
Bournemouth, Southampton & Dorset
Regional hub:
Address:
Bournemouth, Southampton & Dorset
Royal Bournemouth Hospital, Castle Lane East, Bournemouth, Dorset, BH7 7DW
Wessex Clinical Genetics Service, Level G, Princess Anne Hospital Southampton SO16 5YA.
Lead clinician:
Dr Catherine Mercer (Genetics)
Dr Chris Critoph (Dorset Cardiology)
Website:
Affiliated GLH:
West Midlands Genetics Laboratory
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
Central & South
Tel:
02381 206170
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Southampton: Dr Arthur Yue (EP, SADS), Dr Andrew Flett a & Dr John Rawlins (Heart muscle), Dr Aisling Carroll (Aortopathy)
Bournemouth: Dr Chris Critoph (Heart muscle), Dr Richard Bala (EP, SADS)
Stephanie Scott
Email:
Tel:
Email:
0300 019 5244
Tel:
Paediatric ICC Team
Clinicians:
Dr Shankar Sadagopan (EP), Dr Kevin Roman
Email:
Tel:
Clinical Genetics Team
Clinicians:
Dr Catherine Mercer
Email:
Tel:
02381 206170
Pathologist:
Genetic counsellor:
Melanie Watson, 5 additional GCs
Email:
Tel:
02381 206170
Psychological services:
Bradford
Regional hub:
Address:
Leeds General Infirmary
Bradford Teaching Hospitals NHS Foundation Trust, Bradford Royal Infirmary, Duckworth Lane, Bradford, BD9 6RJ
Lead clinician:
Dr Keerthi Prakash
Website:
Affiliated GLH:
North West
Email:
-
Sports Cardiology Cardiomyopathy Channelopathy SADS
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Keerthi Prakash
-
Email:
Tel:
Email:
01274383182
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
-
Brighton
Regional hub:
Address:
Guys and St Thomas' NHS Foundation Trust
Inherited Cardiac Conditions Team, Royal Sussex County Hospital, Eastern Road, Brighton, East Sussex, BN2 5BE
Lead clinician:
Dr Tommy Alway
Website:
-
Affiliated GLH:
South East
Email:
Cardiomyopathy, inherited arrhythmias, aortopathies, SADS screening
Services
Affiliated GMSA:
South East
Tel:
01273696955
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Tommy Alway, Dr Emmanouil Androulakis, Dr Rachael James (aortopathy)
Rodrigo Leoconde (aortopathy)
Email:
Tel:
Email:
01273696955
Tel:
-
Paediatric ICC Team
Clinicians:
N/A
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
N/A
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
N/A
Email:
Tel:
-
-
Psychological services:
N/A
Bristol and South West Inherited Cardiac Conditions Service
Regional hub:
Address:
Bristol
ICC Service, Level 7, Bristol Heart institute, Bristol Royal Infirmary, Terrell St, Bristol BS2 8ED.
Department of Clinical Genetics, St Michaels Hospital, Southwell St, Bristol BS2 8EG.
Lead clinician:
Prof AG Stuart (Cardiology)
Website:
Affiliated GLH:
South West
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular (mitochondrial disease referred to Oxford)
SADS screening
Barth Syndrome Specialist Clinic
Services
Affiliated GMSA:
South West
Tel:
01173424514
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Prof AG Stuart (EP/Aortopathy/cardiomyopathy)
Prof Guido Pieles* leaving jan 2022
Dr Ashley Nisbet (EP/SADS)
Dr Ed Duncan. (EP/ SADS)
Dr Eva Sammut (All ICC)
Dr Steph Curtis (Aortopathy/c=Cardiomyopathy)
Prof Jules Hancox (Cellular EP/Research Channelopathy)
Dr Steve Hamer (Cellular EP/Channelopathy)
Di Barlow (Paediatrics)
Nina Edwards (Adult)
Anna Sice (Adult Arrhythmia nurse with interest in ICC)
Email:
Tel:
Email:
01173424514
Tel:
-
-
Paediatric ICC Team
Clinicians:
Prof AG Stuart (EP/Aortopathy/Cardiomyopathy)
Dr Catherine Armstrong
Dr Cecilia Gonzalez (EP)
Dr Georgia Spentzou (EP)
Prof Jules Hancox (Cellular EP/ Research Channelopathy)
Dr Steve Hamer (Cellular EP/Channelopathy)
Email:
0117 3428852
Tel:
0117 3428852
Clinical Genetics Team
Clinicians:
Prof Ruth Newbury Ecob
Dr Karen Low
Dr Ingrid Scurr
Email:
Tel:
-
Pathologist:
-
Genetic counsellor:
Nicky Jackson
Email:
Tel:
-
-
Psychological services:
N/A
Cambridge - Addenbrooks
Regional hub:
Address:
Cambridge
Cardiology: Department of Cardiology, Ward K2 Box 263, Cambridge University Hospitals NHS Trust, Addenbrookes Hospital, Cambridge Biomedical Campus, Hills Road, Cambridge CB2 0QQ.
Genetics: East Anglian Regional Medical Genetics Service | Box number 134, Cambridge University Hospitals, Hills Road, Cambridge CB2 0QQ.
Lead clinician:
Dr Rosemary Rusk (Cardiology)
Dr Sarju Mehta (Clinical Genetics)
Website:
Affiliated GLH:
East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
Services
Affiliated GMSA:
East
Tel:
01223 349147
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Rosemary Rusk (Aortopathies, Storage Disorders, Multi-system diseases)
Dr Greg Mellor (Electrophysiology, Inherited Arrhythmias)
-
Email:
Tel:
Email:
-
01223 349147
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Sarju Mehta
Email:
Tel:
01223 216446
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Cambridge - Papworth
Regional hub:
Address:
Cambridge
Royal Papworth Hospital, Papworth Road, Cambridge, CB2 0AY
Lead clinician:
Joint
Website:
Affiliated GLH:
East
Email:
-
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Services
Affiliated GMSA:
East
Tel:
01223 639791
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Lynne Williams (Cardiomyopathy, Cardiac Sarcoid, Cardiac Imaging, Neuromuscular Disease)
Dr Greg Mellor (Inherited Arrhythmia)
Email:
Tel:
Email:
01223 639791
Tel:
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Coventry & Warwick
Regional hub:
Address:
University Hospital Coventry and Warwick (UHCW)
UHCW NHS Trust, Clifford Bridge Rd, Coventry, CV2 2DX
Lead clinician:
Joint
Website:
Affiliated GLH:
Central & South
Email:
Cardiomyopathy, Inherited arrhythmias, HCM, Channelopathy, Aortopathy, SADS screening
Services
Affiliated GMSA:
Central and South
Tel:
02476 96 4000
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
HCM/ICC Shared: Prof Faizel Osman (EP)/Dr Peter Glennon (SRT)/Dr Jamal Khan (cardiac imaging) Aortopathy: Dr Dawn Adamson/Mr Uday Dandekar
Geeta Paul, Nav Singh, Kirsty
Email:
Tel:
Email:
Tel:
02476964000
Paediatric ICC Team
Clinicians:
Email:
Tel:
Clinical Genetics Team
Clinicians:
Email:
Tel:
Pathologist:
Genetic counsellor:
Email:
Tel:
Psychological services:
Derby and Burton
Regional hub:
Address:
Cambridge University Hospitals NHS Foundation Trust
UHDB Inherited Cardiac Condition Service, University Hospitals of Derby and Burton, Royal Derby Hospital, Uttoxeter Road, DE22 3NE
Lead clinician:
Joint
Website:
Affiliated GLH:
East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Sarcoidosis
Amyloidosis
Services
Affiliated GMSA:
East
Tel:
01332 785092
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Abutariq Taher (Cardiomyopathy, HCM, channelopathy and SADS)
Dr Nauman Ahmed, Cardiology Service Lead (Imaging, EP, Channelopathy, SADS and Cardiomyopathy)
Dr Surojit Bose (Imaging, aortopathy and cardiomyopathy)
Racelyn Obina
Heather champion
Email:
Tel:
Email:
uhdb.iccservices@nhs.net Secretary email: anna.lawson8@nhs.net
01332 785092
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Nora Shannon
Email:
Tel:
0115 9627728
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
-
Devon & Cornwall
Regional hub:
Address:
Devon & Exeter (Peninsula) ICC Service
Inherited Cardiac Conditions Service, Cardiology Department, Royal Devon and Exeter Hospital, Barrack Road, Exeter, EX2 5DW
Clinical Genetics Royal Devon & Exeter NHS Foundation Trust Gladstone Road, Exeter, EX1 2ED
Lead clinician:
Dr Martina Muggenthaler (Cardiology)
Dr Claire Turner (Clinical Genetics)
Website:
Affiliated GLH:
Bristol
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Amyloid
Services
Affiliated GMSA:
South West
Tel:
01392 408879 (secretary)
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Martina Muggenthaler
Dr Matthew Lovell
Dr Andrew Ludman
Karen Lubbe
Zoe Grout
Lynne Bastable
Email:
Tel:
Email:
01392 408879
Tel:
-
01392 403022
Paediatric ICC Team
Clinicians:
Dr Catherine Armstrong
Dr Nigel Osborne
Prof David Mabin
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Claire Turner
Email:
Tel:
01392 405745
Pathologist:
-
Genetic counsellor:
Sandra Cookson
Nicol Lambord
Email:
Tel:
01392 405745
Psychological services:
-
Essex
Regional hub:
Address:
Essex Cardiothoracic Centre, Basildon
Mid and South Essex University Hospitals Group, Basildon University Hospital, Nethermayne, Basildon, SS16 5NL
Lead clinician:
Dr Jason Dungu
Website:
Affiliated GLH:
East
Email:
-
Cardiomyopathy
SADS
Shared care for mitochondrial disease/neuromuscular disease
Services
Affiliated GMSA:
Royal Brompton Genetics Laboratory
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Jason Dungu
-
Email:
Tel:
Email:
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Gloucester
Regional hub:
Address:
Gloucester
Gloucestershire Hospitals NHS Foundation Trust
Lead clinician:
Dr Will Jenkins
Website:
Affiliated GLH:
Central & South
Email:
Cardiomyopathy
Services
Affiliated GMSA:
Central & South
Tel:
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Will Jenkins
Email:
Tel:
Email:
Tel:
Paediatric ICC Team
Clinicians:
Email:
Tel:
Clinical Genetics Team
Clinicians:
Email:
Tel:
Pathologist:
Genetic counsellor:
Email:
Tel:
Psychological services:
Hull
Regional hub:
Address:
Castle Hill Hospital
Castle Hill Hospital, Castle Road, Cottingham, HU165JQ
Lead clinician:
Dr Matthew Balerdi
Website:
Affiliated GLH:
North West
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
01482 623081
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Matthew Balerdi (Cardiomyopathy (excluding ACM), Aortopathy, Neuromuscular)
Dr Padmanhaban Shakkottai (Arrhythmias +ACM)
-
Email:
Tel:
Email:
01482623081
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Rupal Patel
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Katrina Prescott
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Mrs Kath Ashcroft
Kath Moore
Email:
Tel:
-
-
Psychological services:
N/A
Leeds
Regional hub:
Address:
Leeds General Infirmary
Inherited Cardiac Conditions Service, Department of Cardiology, Jubilee Wing, Leeds General Infirmary, Great George Street, Leeds LS1 3EX.
Department of Paediatric Cardiology, Jubilee Wing, Leeds General Infirmary, Great George Street, Leeds LS1 3EX.
Department of Clinical Genetics, Chapel Allerton Hospital, Harehills Lane, Leeds. LS7 4SA.
Paediatric Psychology Service, E Floor, Martin Wing, Leeds General Infirmary, Great George Street, Leeds. LS1 3EX.
Lead clinician:
Dr Stephen Page
Website:
Affiliated GLH:
North West
Email:
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular ConditionsMitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
0113 3926619
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Stephen Page
Dr Alex Simms
Dr Anshu Sangupta
Dr Waz Baig
Dr Rob Sapsford
Mrs Annabel Nixon
Mrs Clare Taylor
Email:
Tel:
Email:
0113 3926619
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Elspeth Brown
Dr Gracia Delle Donne
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Katrina Prescott
Dr Verity Harthill
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Miss Kath Ashcroft
Kathryn Moore
Email:
Tel:
-
0113 3924436
Psychological services:
Mrs Jayne Slack
leedsth-tr.ccpt@nhs.net
0113 3925143
Leicester
Regional hub:
Address:
University Hospitals of Leicester
Adult ICC service: Glenfield Hospital, Leicester, LE3 9QP.
Clinical Genetics and Paediatrics: Leicester Royal Infirmary, Infirmary Square, Leicester LE1 5WW.
Lead clinician:
Dr Harshil Dhutia
Website:
Affiliated GLH:
Cambridge University Hospitals
Email:
-
Cardiomyopathy
Channelopathy
Aortopathy
SADS screening
Services
Affiliated GMSA:
East
Tel:
01162583888
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr. Harshil Dhutia (adult ICC, cardiomyopathies, channelopathies, sports cardiology)
-
Email:
Tel:
Email:
01162583888
Tel:
-
-
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr H R Dorkins
Email:
Tel:
0116 258 5736 or 0116 258 5697
Pathologist:
-
Genetic counsellor:
Laura Vilajuana
Jess Myring
Email:
Tel:
0116 258 5697
Psychological services:
N/A
Liverpool
Regional hub:
Address:
Liverpool Heart & Chest Hospital
Liverpool Heart & Chest Hospital; Thomas Drive, Liverpool L14 3PE
Lead clinician:
Dr Derek Todd
Website:
Affiliated GLH:
North West
Email:
Cardiomyopathies
Inherited Arrhythmias
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North West
Tel:
01516001391 / 01512543185/ 01512543181
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Derek Todd (Cardiomyopathies, channelopathy, EP, devices)
Prof Rob Cooper (Heart Muscle; Septal Reduction, CMR, Sports Cardiology)
Dr Victoria Petermerides (Cardiomyopathies, Channelopathies, Echocardiography, Sports Cardiology)
Dr Timothy Fairbairn (Advanced Imaging)
Dr Simon Modi (Channelopathies, cardiomyopathies, devices, EP, ASA)
Dr A Rao (Cardiomyopathies, devices)
Prof D J Wright (Cardiomyopathies, devices)
Prof Rod Stables (Intervention, septal reduction)
Mr Mark Pullan (Cardiothoracic surgeon, septal reduction and valve disease)
Dr Afshin Khalabari (Imaging - Inherited Aortopathies, Marfans)
Dr Richard Snowdon (Devices, sarcoid)
Mrs Karthryn Abernethy
Mrs Angela Langton
Email:
Tel:
Email:
-
-
Tel:
-
0151 600 1270 option 2
Paediatric ICC Team
Clinicians:
Dr Michael Bowes (Based at Alder Hey Hospital, Liverpool)
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Victoria McKay
Dr Natalie Canham
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Mrs Louise Dubois
Mrs Kim Clarke
Email:
Tel:
-
-
Psychological services:
Dr Jane McLachlan
London - Barts Heart Centre
Regional hub:
Address:
Barts Heart Centre
Department Of Inherited Cardiovascular Disease Unit (ICVD), Barts Heart Centre, St Bartholomew’s Hospital, West Smithfield, London EC1A 7BE.
Lead clinician:
Dr Neha Sekhri (ICVD (Cardiomyopathies)
Prof Pier Lambiase (Channelopathies)
Dr Fiona Walker (Aortopathies)
Website:
Affiliated GLH:
Royal Brompton Genetic Laboratory
Email:
Cardiomyopathy: bhnt.icvd@nhs.net
Channelopathy: bartshealth.ianurses@nhs.net
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (jointly with Queen Square)
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Services
Affiliated GMSA:
North Thames
Tel:
Cardiomyopathy: 020 3765 8611
Channelopathy: 0203 76 58644
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Neha Sekhri (Cardiomyopathy)
Prof Perry Elliott (Cardiomyopathy)
Prof Saidi (Sam) Mohiddin (Cardiomyopathy)
Dr Constantinos O'Mahony (Cardiomyopathy)
Dr Luis Lopes (Cardiomyopathy)
Dr Konstantinos Savvatis (Cardiomyopathy)
Dr Oliver Guttmann (Cardiomyopathy)
Dr Massimiliano Lorenzini (Cardiomyopathy)
Prof Pier Lambiase (Channelopathies/Arrhythmia Syndromes)
Prof Richard Schilling (Channelopathies/Arrhythmia Syndromes)
Dr Martin Lowe (Channelopathies/Arrhythmia Syndromes)
Dr Fiona Walker (ACHD, Aortopathies)
Dr Katherine von Klemperer (ACHD, Pregnancy)
Dr Bejal Pandya (ACHD, Aortopathies)
Cardiomyopathy: Linda Moss, Fiona Kearl, Nicola Champion, Henrietta Amponsah
Channelopathy: Charlotte Ives, Lucy Sivaraman, Claire Kirkby
Email:
Tel:
Email:
020 3765 8611
Tel:
0203 7658644
Paediatric ICC Team
Clinicians:
Prof Juan Kaski (Great Ormond Street)
Email:
Tel:
Linked with GOSH
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Huafrin Kotwal
Sinead Horgan
Antonetta Malan
Email:
Tel:
0203 7658612 or 7658875
Psychological services:
Victoria Kelly
London - GOSH
Regional hub:
Address:
Great Ormond Street Hospital (GOSH)
Centre for Inherited Cardiovascular Diseases, Great Ormond Street Hospital, Zayed Centre for Research into Rare Disease in Children, 20 Guilford Street, London WC1N 1DZ
Lead clinician:
Prof Juan Pablo Kaski
Website:
Affiliated GLH:
North Thames
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (jointly with Queen Square)
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Services
Affiliated GMSA:
North Thames
Tel:
020 7405 9200 Secretaries: ext 8839 or 5298
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Martin Lowe (Inherited Arrhythmia - Transition)
Emma Lord (Cardiomyopathy)
Sorcha Smyth (Cardiomyopathy)
Elisha Thompson (Cardiomyopathy)
Nichola French (Inherited Arrhythmia)
Alessia Odori (Inherited Arrhythmia)
Amy Fox (Aortopathy)
Ida Atti (Transition, Inherited arrhythmia)
Vacant post - TBC (Aortopathy)
Email:
Tel:
Email:
N/A - See Barts
N/A - See Barts
Tel:
Cardiomyopathy CNSs: ext 5305
Inherited arrhythmia CNSs: ext 5139
Aortopathy CNSs: 5124
Paediatric ICC Team
Clinicians:
Dr Juan Pablo Kaski (Cardiomyopathy; SADS; Inherited Arrhythmia)
Email:
Tel:
Clinical Fellows (for urgent and inpatient referrals): ext 7099
Clinical Genetics Team
Clinicians:
Dr Angharad Roberts (Aortopathy, Cardiomyopathy)
Email:
Tel:
-
Pathologist:
-
Genetic counsellor:
Stephanie Oates (Cardiomyopathy, Inherited arrhythmia, Aortopathy)
Email:
Tel:
-
Psychological services:
Dr Hannah Duncan
Dr Zoe Berger
London - Imperial
Regional hub:
Address:
Hammersmith Hospital
Imperial College Healthcare NHS Trust, Hammersmith Hospital, Peart Rose Clinic, Du Cane road, London, W12 0HS.
Lead clinician:
Dr Amanda Varnava
Website:
Affiliated GLH:
Royal Brompton Genomics Lab
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (jointly with Queen Square)
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Amyloid
Services
Affiliated GMSA:
South East
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Amanda Varnava
Vanessa Smith
Email:
Tel:
Email:
-
Tel:
07768 980832
Paediatric ICC Team
Clinicians:
Dr Amanda Varnava
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
-
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
London - Kings Health Partners (Guy's and St Thomas' and King's College Hospitals)
Regional hub:
Address:
Kings Health Partners (Guy's and St Thomas' and King's College Hospitals)
Cardiovascular Department, South Wing, Block D Lower Ground Floor, St Thomas' Hospital, Westminster Bridge Road, London, SE1 7EH.
Department of Cardiology, Hambledon Wing, Kings College Hospital, Denmark Hill, London SE5 9RS.
Paediatric Cardiology, Evelina London Children's Hospital, Westminster Bridge Road, London, SE1 7EH.
Clinical Genetics Department, Guys Hospital, 7th Floor Borough Wing, Great Maze Pond, London, SE1 9RT.
Lead clinician:
Dr Rachel Bastiaenen (ICC Adult Cardiology)
Dr Leema Robert (Cardiovascular Genetics)
Dr Aaron Bell (ICC Paediatric Cardiology)
Website:
Affiliated GLH:
Royal Brompton Molecular Lab (Viapath)
Email:
gst-tr.cardiology@nhs.net
kch-tr.kchreferrals@nhs.net
gst-tr.elchpaedcardioreferrals@nhs.net
gst-tr.geneticsreferrals@nhs.net
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Amyloid
Services
Affiliated GMSA:
South East
Tel:
02071884927
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Prof Gerry Carr-White (Cardiomyopathy / Mitochondrial)
Dr Rachel Bastiaenen (Cardiomyopathy / Inherited Arrhythmia)
Dr Nabeel Sheikh (Cardiomyopathy / Sports)
Dr Hannah Sinclair (Cardiomyopathy / Paediatric Transition)
Dr Michael Cooklin (Inherited Arrhythmia)
Dr Tevfik Ismail (Cardiomyopathy / Myocarditis)
Dr Brian Halliday (Cardiomyopathy)
Dr Jess Webb (Cardiomyopathy)
Dr Mehdi Eskandari (Cardiomyopathy)
Dr Yaso Emmanuel (Aortopathy)
Dr Stam Kapetanakis (Muscular Dystrophy)
Liam Tobin (Lead Nurse / Inherited Arrhythmia)
Liz Wilson (Cardiomyopathy / Inherited Arrhythmia)
Colin Evans (Cardiomyopathy / Paediatric Transition)
Soraya Nuthoo (Cardiomyopathy / Inherited Arrhythmia)
Email:
Tel:
Email:
02071884927
Tel:
-
Paediatric ICC Team
Clinicians:
Dr Aaron Bell (Paediatric Cardiomyopthy)
Dr Sujeev Mathur (Paediatric Cardiomyopathy / Aortopathy)
Dr Eric Rosenthal (Inherited Arrhythmia)
Dr Will Regan (Inherited Arrhythmia)
Dr Alessandra Mazzola (Locum Paediatric Cardiomyopathy)
Email:
Tel:
02071888400
Clinical Genetics Team
Clinicians:
Dr Leema Robert (Cardiovascular Genetics / Aortopathy)
Dr Rhoda Akipil (Cardiovascular Genetics)
Email:
Tel:
02071888400
Pathologist:
-
Genetic counsellor:
Anna Lehmann (Cardiovascular / General Genetics)
Email:
Tel:
02071881364
Psychological services:
N/A
London - Royal Brompton & Harefield Hospitals part of Guys & St Thomas' NHS Trust
Regional hub:
Address:
Royal Brompton & Harefield
Royal Brompton Hospital, Sydney Street, Chelsea, SW3 6NP.
Harefield Hospital, Hill End Road, Harefield, Middlesex, UB9 6JH.
Lead clinician:
Dr Antonis Pantazis
Website:
Affiliated GLH:
South East
Email:
Cardiomyopathy (including septal reduction treatment)
Inherited Arrhythmia
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Inflammatory heart disease
Familial Hypercholesterolaemia
Services
Affiliated GMSA:
South East
Tel:
020 7351 8103
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Antonis Pantazis
Dr Jan Till (EP, Channelopathy, incl paeds)
Dr Sanjay Prasad (Heart Failure & Imaging)
Dr John Baksi (Cardiomyopathy & CMR)
Dr Amrit Lota
Dr Brian Halliday
Dr Zohya Khalique
Dr Sabhita Gati (Sports Cardiology)
Dr Leonie Wong (Channelopathy, incl paeds)
Prof James Ware
Prof Christoph Nienaber (Aortopathy)
Mr Fabio De Robertis (Surgeon)
Mr Andreas Hoschtitsky (Surgeon)
Dr Mahmoud Barbir (Familial Hypercholesterolaemia)
Professor Piers Daubeney (Paeds Cardiomyopathy)
Dr Andres Rico-Armada (Paeds Cardiomyopathy)
Dr Hiyam Mahmoud (Paeds Cardiomyopathy)
Bethan Cowley- Lead Nurse (Adult)
Rachel Mackay (Adult)
Emma Ashby (Adult)
Lucy Martin (Adult)
Hannah Piper (Adult)
Fortunate Rusike (Adult)
Lucy Green (Paeds)
Sami Collins (Paeds)
Lucy Barrington (Paeds)
Dan Blacker (Paeds)
Rachana Kalathiparambil Ramakrishnan (Paeds)
Catherine Renwick (Paeds)
Emma Neves (Familial Hypercholesterolaemia)
Laura Davis (Familial Hypercholesterolaemia)
Claire Chalwin (Familial Hypercholesterolaemia)
Emma Lee (Familial Hypercholesterolaemia)
Charis Browne (Familial Hypercholesterolaemia)
Email:
Tel:
Email:
-
-
Tel:
0207 3528121 ext: 88823, 82205. Familial Hypercholesterolaemia Nurses: 01895 823737 ext: 85084
Paediatric ICC Team
Clinicians:
Professor Piers Daubeney, Dr Jan Till
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Tessa Homfray
Dr Neeti Ghali
Dr Fleur van Dijik
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Ellie Quinn
Sam Mason
Juliette Harris
Email:
Tel:
-
Psychological services:
Dr Hannah Levy (Paeds)
Dr Anne-Marie Doyle (Adult)
London - St George's Hospital
Regional hub:
Address:
St George's University Hospitals NHS Foundation Trust
Cardiac Outpatients, Atkinson Morley Wing, St George's Hospital NHS Trust, Blackshaw Road, SW170QT
Department of Clinical Genetics, St Georges University of London, Cranmer Terrace, London, SW170RE
Lead clinician:
Joint
Website:
Affiliated GLH:
South East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Sports cardiology
Services
Affiliated GMSA:
South East
Tel:
02087255526
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Prof Sanjay Sharma
Prof Elijah Behr
Dr Michael Papadakis
Dr Maite Tome-Esteban
Dr Mark Specterman
Amanda Potterton (Lead nurse)
Katie Frampton
Rachel Simmons
Harriet Dawes
Edel Neary
Email:
Tel:
Email:
02087255526
Tel:
-
-
Paediatric ICC Team
Clinicians:
Drs Jan Till and Leonie Wong (visiting consultants from Royal Brompton Hospital)
Email:
Tel:
02087255526
Clinical Genetics Team
Clinicians:
Dr Tessa Homfray (ICC)
Dr Matine Prapa (ICC)
Suzanna Alster (Aortopathy)
Email:
Tel:
-
Pathologist:
-
Genetic counsellor:
Heidy Brandon (Principle Genetic Counsellor ICC/Aortopathy)
Virginia Attard (ICC)
Email:
Tel:
-
-
Psychological services:
N/A
Manchester
Regional hub:
Address:
Manchester Royal Infirmary
Manchester Heart Centre, Manchester Royal Infirmary, Purple Zone, Oxford Road, M13 9WL.
Paediatric Cardiology, Royal Manchester Children's Hospital, Oxford Road, Manchester. M13 9WL.
Manchester Centre for Genomic Medicine, Clinical Genetics Service, 6th Floor, St Mary's Hospital, Oxford Road, Manchester. M13 9WL.
Lead clinician:
Joint
Website:
Affiliated GLH:
North West
Email:
-
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North West
Tel:
0161 276 6631
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Luigi Venetucci
Prof Cifford Garratt
Prof Bernard Clarke
Prof Bernard Keavney
Dr Aneil Malhotra
Prof Ray
Jennifer Dalloway-Jones
Email:
Tel:
Email:
0161 276 6631
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Michael Bowes
Dr Ed Ladusans
Email:
-
Tel:
0161 701 2179
Clinical Genetics Team
Clinicians:
Dr Kay Metcalfe
Prof William Newman
Dr Emma Burkitt-Wright
Email:
Tel:
-
0161 276 6145
Pathologist:
-
Genetic counsellor:
Natelie Moreton
Sarah Bennett
Somya Ellis
Eleanor Nicholson
Email:
Tel:
-
0161 276 6145
Psychological services:
-
Newcastle
Regional hub:
Address:
Freeman Hospital Newcastle
Freeman Hospital, Freeman Rd, High Heaton, Newcastle upon Tyne NE7 7DN
Lead clinician:
Dr Stephen Lord
Website:
Affiliated GLH:
North West
Email:
-
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Stephen Lord
Dr John Bourke
Julie Goodfellow
Email:
Tel:
Email:
-
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Neil Seller
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Paul Brennan
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
Lindsay O'Dair
Email:
Tel:
-
-
Psychological services:
N/A
Northern Ireland
Regional hub:
Address:
Belfast City Hospital (Belfast Health and Social Care Trust)
Northern Ireland Inherited Cardiac Conditions Service (NI ICC), Level 10 South, Belfast City Hospital, Lisburn Rd, Belfast BT9 7AB.
Lead clinician:
Dr Alison Muir
Website:
Affiliated GLH:
Manchester (via Belfast)
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Services
Affiliated GMSA:
-
Tel:
02895047057
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Alison Muir
Dr Damian McCall
Prof Pascal McKeown
Helen Connolly
Tracy Jardine
Joanne McOsker
Email:
Tel:
Email:
sara.king@belfasttrust.hscni.net or NIICCselfreferral@bhsct.hscni.net (by invitation only)
02895047057
Tel:
-
02895042626 / 02890632989 / 02890636454
Paediatric ICC Team
Clinicians:
Prof Frank Casey
Dr Jane Murray (Assoc Specialist)
Email:
sara.king@belfasttrust.hscni.net or NIICCselfreferral@bhsct.hscni.net (by invitation only)
Tel:
02895047057
Clinical Genetics Team
Clinicians:
Dr Gillian Rea
Email:
Tel:
sara.king@belfasttrust.hscni.net or NIICCselfreferral@bhsct.hscni.net (by invitation only)
02895047057
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Norwich
Regional hub:
Address:
Addenbrookes, Cambridge
Dept of Cardiology, Norfolk and Norwich Hospital, Colney Lane, Norwich, NR4 7UY
Lead clinician:
Dr Sunil Nair
Website:
Affiliated GLH:
East Anglia Medical Genetics Service
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Services
Affiliated GMSA:
East
Tel:
01603 288770
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Sunil Nair
Dr Ian Williams
Dr Cathy Head
Ms Caroline Hall
Emman Hughes
Email:
Tel:
Email:
-
Tel:
-
01603 288770
Paediatric ICC Team
Clinicians:
-
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Provided by EAMGS
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Nottingham
Regional hub:
Address:
Addenbrooks Cambridge
Nottingham ICC Service, Linby Ward, 2nd Floor South Block, Nottingham City Hospital, Nottingham NG5 1PB.
Nottingham Regional Genetics Service, The Gables, Nottingham City Hospital, Hucknall Road, Nottingham NG5 1PB.
Lead clinician:
Dr A Staniforth
Website:
Affiliated GLH:
East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Services
Affiliated GMSA:
East
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Andrew Staniforth (EP, channelopathy and SADS)
Dr Tim Robinson (EP, channelopathy and SADS)
Dr John Walsh (Cardiomyopathy and aortopathy)
Dr Bara Erhayiem (Imaging and cardiomyopathy)
Ms Samantha Corbett
Email:
Tel:
Email:
0115 9691169 ext 72197 or ext 74999 Paul Stowell secretary
Tel:
-
0115 9691169 ext 72197 or ext 74999 Paul Stowell secretary
Paediatric ICC Team
Clinicians:
Dr Mark Fenner
Dr Sirisha Balmuri
Email:
-
Tel:
0115 9249924 ext 82465
Clinical Genetics Team
Clinicians:
Dr Nora Shannon
Email:
Tel:
0115 9627728
Pathologist:
-
Genetic counsellor:
Dr Keri Oliver
Email:
Tel:
0115 9627728
Psychological services:
N/A
Oxford
Regional hub:
Address:
John Radcliffe Hospital
ICC Service, Level 6, West Wing, John Radcliffe Hospital, Headley Way, Headington, Oxford OX3 9DU
Lead clinician:
Dr Eleanor Wicks (Clinical Lead)
Professor Hugh Watkins (Academic lead)
Website:
Affiliated GLH:
Central & South
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease (jointly with Elaine Murphy & Nishan Guha)
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Amyloid
Services
Affiliated GMSA:
Central & South
Tel:
01865 234674
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Eleanor Wicks
Professor Hugh Watkins
Dr Ester Szepesvary (paeds)
Dr Julian Ormerod
Dr Ed Blair (genetics)
Dr Alex Pitcher (aortopathy)
Kerri Anderson-Bazaz
Davina Diomampo
Email:
Tel:
Email:
(01865) 234674
Tel:
01865 234675
Paediatric ICC Team
Clinicians:
Dr Ester Szepesvary (ICC)
Email:
Tel:
01865231313
Clinical Genetics Team
Clinicians:
Dr Ed Blair
Email:
Tel:
-
Pathologist:
-
Genetic counsellor:
Kathryn Lubasch
Smrithi Devaiah
Liz Ormondroyd
Email:
Tel:
01865 234673
Psychological services:
Dr Heather Salt
Scotland - East
Regional hub:
Address:
Ninewells Hospital and Medical School, Dundee
Ninewells Hospital and Medical School, Dundee, DD1 9SY
Lead clinician:
Anna Maria Choy (Cardiology), Catherine McWilliam (Genetics)
Website:
Affiliated GLH:
NHS Scotland Genetics Consortium
Email:
-
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Services
Affiliated GMSA:
NHS Scotland Genetics Consortium
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Anna Maria Choy
Zanna Christie (Arrhythmia)
Kirsten Patterson (Genetics)
Email:
Tel:
Email:
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Rebecca Goldman
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Catherine McWilliam
Dr David Goudie
Dr Jonathan Berg
Email:
Tel:
-
-
Pathologist:
-
Genetic counsellor:
-
Email:
Tel:
-
-
Psychological services:
N/A
Scotland - North
Regional hub:
Address:
Network For Inherited Cardiac Conditions Scotland
Aberdeen, Clinical Genetics Ashgrove House, Foresterhill, Aberdeen, AB25 2ZA
Lead clinician:
Dr John Dean
Website:
Affiliated GLH:
Scottish Genetics Consortium
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Services
Affiliated GMSA:
Scottish Genetics Consortium
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Paul Broadhurst (Arrhythmias)
Dr Duncan Hogg (Cardiomyopathies)
Adele Lewis (Cardiomyopathy)
Amy Bull (Cardiomyopathy)
Email:
Tel:
Email:
-
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Detlev Rogahn
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr John Dean
Email:
Tel:
01224 552120
Pathologist:
-
Genetic counsellor:
Hazel Hailey
Annie Johnes
David Baillie
Email:
Tel:
-
-
Psychological services:
N/A
Scotland - South East and Borders
Regional hub:
Address:
Edinburgh - Western General and Royal Infirmary Hospitals
Royal Infirmary of Edinburgh, 51 Little France Crescent, Old Dalkeith Road, Edinburgh, EH16 4SA
South East of Scotland Clinical Genetics Service, Western General Hospital, Crewe Road, Edinburgh, EH4 2UX
Lead clinician:
-
Website:
Affiliated GLH:
Scottish Genetics Consortium
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease (separate team)
Mitochondrial disease
SADS screening
Services
Affiliated GMSA:
Scottish Genetics Consortium
Tel:
-
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Martin Denvir
Dr Neil Grubb
-
Email:
Tel:
Email:
-
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr M Walayat
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Wayne WK Lam
Email:
Tel:
01315371116
Pathologist:
-
Genetic counsellor:
Debbie Mackin
Gillian Scott
Phillip Green
Email:
Tel:
01315371116
Psychological services:
N/A
Scotland - West
Regional hub:
Address:
Queen Elizabeth University Hospital, Glasgow
Clinical Genetics, West of Scotland Regional Genetics Service, Level 2A Laboratory Medicine Building, Queen Elizabeth University Hospital, 1345 Govan Road, Glasgow, G51 4TF
Lead clinician:
Dr Ruth McGowan (Genetics)
Dr Caroline Coats (Cardiology)
Website:
Affiliated GLH:
Scottish Genetic Testing Consortium
Lothian (Cardiomyopathy testing)
Grampian (Arrhythmia testing)
Tayside (Aortopathy testing)
Email:
-
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
SADS screening
Services
Affiliated GMSA:
Scottish Genetics Consortium
Tel:
01414516131
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Caroline Coats (Cardiomyopathy)
Dr Rachel Myles (Arrhythmia)
Dr Joanne Simpson (Amyloid; Ayrshire)
Sister Joan Anusas (Glasgow, Regional)
Sister Nicola Rundle (Ayrshire)
Sister Frances Kennedy (Forth Valley)
Sister Catriona Hardie (Lanarkshire)
Email:
Tel:
Email:
-
01414516131
Tel:
0141 354 9251
Paediatric ICC Team
Clinicians:
Dr Karen McLeod
Dr Maria Ilina
Email:
-
Tel:
Reception: 0141 354 9201
Clinic Nurse: 0141 354 9207
Clinical Genetics Team
Clinicians:
Dr Ruth McGowan
Dr Peter Constantiou
Email:
Tel:
-
Reception: 0141 354 9201
Clinic Nurse: 0141 354 9207
Pathologist:
-
Genetic counsellor:
Mr Mark Longmui
Ms Denise Oxnard
Email:
Tel:
-
0141 354 9300
Psychological services:
Via cardiac rehab
Sheffield
Regional hub:
Address:
South Yorkshire Cardiothoracic Centre, Sheffield
Inherited Cardiac Conditions Service, Dept of Cardiology, Northern General Hospital, Sheffield, S5 7AU.
Sheffield Children's Hospital, Western Bank, Sheffield, S10 2TH.
Clinical Genetics Department, Outpatients 2, Northern General Hospital, Sheffield, S5 7AT.
Lead clinician:
Prof Nigel Wheeldon
Website:
Affiliated GLH:
North East
Email:
Cardiomyopathy
Channelopathy
Aortopathy
Neuromuscular disease
Mitochondrial disease
Metabolic disease
SADS screening
Inflammatory heart disease (myocarditis, sarcoid)
Amyloid
Services
Affiliated GMSA:
North East & Yorkshire
Tel:
0114 305 5021
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Prof Nigel Wheeldon
Dr Nigel Lewis
Dr Oliver Watson
Rachel Walker
Karen Angelini
Naomi Taylor
Alison Moore
Elaine Hobson
Donna Kelf
Charlotte Lee
Tina Bennett
Email:
Tel:
Email:
-
Tel:
-
-
Paediatric ICC Team
Clinicians:
Dr Rupa Talekar
Email:
-
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Jackie Cook
Dr Oliver Quarrell
Dr Alisdair McNeill
Dr Mick Parker
Email:
Tel:
0114 271 7025
Pathologist:
-
Genetic counsellor:
Richard Sayers
Carrie Hammond
Mary Jones
Jo Patterson
Sharon Pagdin
Freya Doherty
Alyson Bradbury
Jessica Bowen
Tammy Kammin
Claire Green
Email:
Tel:
0114 271 7025
Psychological services:
N/A
Southampton
Regional hub:
Address:
Southampton General Hospital
Southampton General Hospital, Tremona Road, Southampton, Hampshire SO16 6YD
Wessex Clinical Genetics Service, Level G, Princess Anne Hospital, Southampton SO16 5YA
Paediatric ICC, Southampton General Hospital, Tremona Road, Southampton , Hampshire, SO16 6YD
Lead clinician:
Dr Catherine Mercer
Website:
Affiliated GLH:
West Midlands Genetics Laboratory
Email:
-
Cardiomyopathies
Inherited Arrhythmias
Aortopathies
Neuromuscular Conditions/Mitochondrial Disease
SADS Screening
Amyloid
Services
Affiliated GMSA:
Central & South
Tel:
02380 777222
Adult Cardiology ICC Team
Clinicians:
ICC Nurses:
Dr Arthur Yue (EP, SADS)
Dr Andrew Flett (Heart muscle, imaging)
Dr Aisling Carroll (Aortopathy)
Dr John Rawlins (Heart muscle)
Dr Christopher Critoph (Heart muscle)
Stephanie Scott
Email:
Tel:
Email:
02380 777222
Tel:
-
Paediatric ICC Team
Clinicians:
Dr Shankar Sadagopan
Dr Kevin Roman
Email:
Tel:
-
Clinical Genetics Team
Clinicians:
Dr Catherine Mercer
Email:
Tel:
02381 206170
Pathologist:
-
Genetic counsellor:
Melanie Watson
5 additional genetic counsellors
Email:
Tel:
02381 206170
Psychological services:
N/A